Friday, April 10, 2015

Project Eyram Concept Note

Project Eyram, initiated by Mrs Hannah Awadzi is a project that seeks to reach out to mothers. I call the mothers I want to reach out to “Special Mothers” because they have Special children. I am referring to mothers with children who are Cerebral Palsy.

Cerebral palsy (CP) is a disorder that affects muscle tone, movement, and motor skills (the ability to move in a coordinated and purposeful way) that makes these children unable to sit, walk stand nor talk initially, however some of the children are able to achieve all their developmental milestones later.

These Special mothers need encouragement and support from their families, communities, societies and the nation as a whole to prevent them from being depressed and in extreme cases to lose their lives.

Sometimes by virtue of the fact that a woman gave birth to a child with Cerebral Palsy her marriage is affected and about 70 percent of Ghanaian women who has children with this disease end up having their husbands leave them and having to care for the children alone.

These special mothers need to be loved rather than being stigmatized because of their children and the society as a whole need to recognize that these children also have potentials and can actually contribute immensely to society’s development.

The Mothers are left traumatized and the society usually tries to find a cause for their children's illness, these children are most often than not referred to as cursed children however Ghana has a bright example to look up to.

 Farida Nana Efua Bedwei is a Ghanaian software engineer has a shinning example that our society can look up to.

These Special mothers need information about the disease their children is suffering and how to handle the children.

Ultimately, I believe that these Special mothers need to come together to share their experiences and learn from each other on how they have been able to handle their special children. These special mothers need to talk about their successes and their failures and need good social support systems

What makes them happy with their children and also share their frustrations.

Project Eyram seeks to bring together these special mothers into  contact with existing groups with similar interest and endeavour to bring more mothers together to share information and generate more strength while encouraging them with hope.


Hannah Awadzi is a mother of two wonderful and blessed children. Her first daughter Eyram was diagnosed with Cerebral Palsy at eight month.

“I was very depressed, devastated, I asked why me several times, in fact I got to the point where I even felt that death was okay, however, I did not cease to pray about the situation, I use to pray day and night. I spent long hours seeking the Lord’s face and yearning that God speak concerning my daughter. I still have a lot of faith that my daughter will walk and achieve her God-given assignment on earth.

One day, I read a book that talked about appreciating God and I started practicing it and that turned my life around. I was now very excited about my daughter. I started calling her a blessing and I felt real joy within.

After sometime, I started reaching out to people with similar challenges and anytime, I was able to do that I experienced a higher level of joy.

Ultimately, I will publish a book that document my experiences as well as other peoples experiences and how I have being able to deal with this issue so far.

#My advice to all Ghanaians is that let’s begin to reach out to others, let’s begin to share our pain as well as our joy for in doing that you might be solving another person’s problem

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