Parents of children
with cerebral Palsy are calling for social support services that will enhance
the lives of families raising such children.
The Parents mostly mothers, at a meeting on Saturday, said the lack of services such as professional
care giver support, lack of educational support and the absence of community
based rehabilitation centres make it difficult for them to feel part of
society.
Parents of children with cerebral palsy interacting |
Mrs Hannah Awadzi, Executive Director of the Special Mothers
Project, an advocacy and awareness creation programme on cerebral palsy said
the parents were ready to engage with government and offer suggestions that
will enhance the lives of families raising children with cerebral palsy.
Cerebral palsy is a neurological condition that affects the
movement and sometimes speech of children. It is the number one cause of
disability in children.
Mrs Awadzi said majority of parents of children with
cerebral palsy do not have access to the disability fund, usually when they are
talking about disability issues parents or children with cerebral palsy are
ignored
She called on the government to engage parents when drafting
policies that affects them, saying, the mothers especially are in a better
position to suggest practicable policies that will enhance the lives of
families raising children with cerebral palsy.
Mrs Gifty Iddrissu, Coordinator of the Special Mothers
Project advised parents to invest time and effort into making their children
with cerebral palsy independent.
She said “Transform your home into a therapy centre, let
therapy be part of your daily routine.”
The Parents used the meeting as an opportunity to network,
share words of encouragement and had fun.
The Special Mothers Project also serves as a peer counseling
platform for parents of children with cerebral palsy.
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