Mrs Lydia Bedwei, Mother of Farida Bedwei, a successful I T
Entreprenuer with Cerebral Palsy has advised parents of children with the
disorder to learn to exercise a lot of patience in caring for the children.
She also advised parents to learn the various types of
physiotherapy done with their children by professionals and inculcate it into
their daily lives, emphasizing the need to involve the whole family in the
therapy programmes.
Mrs Bedwei said this at a workshop oraganised over the
weekend for over 30 parents with Cerebral Palsy children to enable them learn
basics in physiotherapy and encourage networking among parents
The workshop organized by Sharecare Ghana, an association of
people with autoimmune and neurological conditions, in collaboration with the
Special Mothers Project, an advocacy programme on Cerebral Palsy, also served
as a skill learning platform for professionals and parents to interact.
Cerebral Palsy is a non-progressive neurological disorder
caused by brain injury or malformation while the child’s brain is developing.
Cerebral Palsy affects body movement, muscle control, muscle coordination, and
sometimes the speech of the child.
Mrs Bedwei said: “Sometimes it is good to take your mind off
result and work with the children as if you are doing it for God, know that the
child is part of you and after a long time light shines”
She also advised parents with Cerebral Palsy children to
build a routine, like therapy time, feeding time, sleep time, etc for the
children, explaining that it helps the children as well as the parents to have
an independent life
Another aim of the programme which was supported by Diligent
Care Services, a UK-based organization passionate about helping parents of
children with Cerebral Palsy in Ghana and the Accra Physiotherapy and Sports Injury Clinic
was to empower parents with knowledge on Cerebral Palsy and equip them to manage their children have
an enhanced life
,
Mr. Augustine Acquah, a physiotherapist at the Accra
Physiotherapy Clinic took the parents through basic and practical physiotherapy
techniques that could be done at home.
A dietician, Ms. Ruth Nyarko, also educated parents on the
right combination of nutritious food to feed children with Cerebral Palsy.
The programme also offered a platform for parents of
children with Cerebral Palsy to network and share experiences.
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