Wednesday, August 12, 2020

Reopening Schools in this Covid 19 Era, Children with Special Educational Needs on my mind

 

Someone did a survey on Facebook trying to find out if parents would send their children to school should it reopen.

I was surprised at the number of people who said yes, I also said yes and added that I am actually tired of being home.

I am a mother of a child with special educational needs, cerebral palsy, specifically and I have been home since the 12th of March, yes earlier than when President Akuffo-Addo announced the closure of schools.

Before the 12th of March, my daughter who is in class one in a government mainstream education, was told not to come to school on the 12th of March, that day was a day designated for sports in the school and she cannot participate

That meant I had to skip work and take care of her at home, I was looking forward to taking her to school on Monday when the announcement of the closure of schools as a result of Covid 19 came on the 15th of March.

I have been home since, thanks to the fact that some workplaces in compliance with the social distancing protocol divided workers and the fact that my husband got some 10 days break after going to work every 10 days, I would have been stuck at home since March

I told a friend recently that any opportunity to step out of the house without the children is luxury for me, think of the fact that anytime, I am stepping out, be it to the market or anywhere, I have to carry a seven year old girl on my back in addition to two younger ones

But even before Covid 19, most parents of children with cerebral palsy do not really come into the picture when we talk about education, one of the reasons I feel that covid 19 has really exposed our flaws toward humanity

So my daughter with cerebral palsy is in school and depends on other humans to live comfortably, someone has to feed her, someone has to help her drink water, even though she is toilet trained, when she is going to school we have to put her in diapers because she needs help to use the school toilet.

Definitely if schools should reopen tomorrow or the next, she will still need human support to be able to stay comfortably in school, she may not be able to be in mask the whole time she is in school, she cannot wash her hands independently nor use the sanitizer independently.

Because she has been a child who has been to school throughout her life, I can feel she is tired of being at home and I can imagine how frustrated she will be if her siblings can go back to school and she is left at home.

She is not the only one tired of being home, her mother is tired of handling her all the time and that two to four hour break when she is away from is considered respite.

Besides the opportunity for my daughter to be at school and mingle with other children has been of great help to boosting her social life and confidence. Because of the orientation given her other classmates when she joined them in the class, she has neither being mocked nor shunned for her disability, rather, she has been embraced and loved by her peers to my admiration.

That is why I seriously believe that in considering the reopening of schools for all children to go to school, children with disabilities or special educational needs should be greatly considered and planned for.

This era should even be an avenue to discuss how we can cater for children with disabilities and groom them for a good social life and also explore the potentials they possess.

I was recently invited by the Centre for Learning and Childhood Disabilities (CLCD) to talk about reopening of schools in this Covid 19 era, from a caregivers experience and I shared my journey of how challenging it has been to try and enrol my daughter with cerebral palsy into school.

My experiences resonated with lot of special needs families, some even felt I was better placed since they have not even had the opportunity to enrol their children into school.

In my presentation for the CLCD workshop, I recommended the use of National Service persons, NABCO persons and students doing internships to enhance the human resource capacities of schools and serve as support to schools.

I have earlier said that Caregiving should be considered a profession, I once met a Lady who has completed the University and she said caring for children with Special Needs was her passion so she works with such children in schools or other establishments.

The challenge for many parents has been that some of these establishments are so expensive that it is not affordable at all to the average income earner.

In that case, only the priviledged in terms of wealth, are able to afford anything close to education for their children with disabilities or special educational needs.

Meanwhile if the government assigned National Service Persons or NABCO persons to such schools, they could be trained to handle these children under supervision and it will be a win-win situation for all.

I think that Caregiving is one employment avenue that we haven’t explored as a country and the earlier we start exploring, the better for the country.

I will continue to say that Inclusive Education is possible, it is our willingness to accept all children into our educational system that remains.

As we continue discussions on ‘Living with the virus’ and reopening of schools may we all have children with special educational needs in mind

5 comments:

  1. Good education about fundamental rights for children.

    ReplyDelete
  2. Thank you Hannah for once again highlighting the challenges faced by parents with children with special needs. We trust that someone out there will listen. I am also very tired of the talk with very little action.

    A parent called me yesterday asking when schools will be reopened because her daughter who is autistic wants her dress ironed every morning in anticipation of going to school.

    Parents clearly need respite so they don't suffer burnout which might affect the quality of care.

    ReplyDelete
  3. Thank you for talking about this.

    ReplyDelete