Wednesday, April 6, 2016

Special Mothers Project!!! Now Official

Hurraaay!!! The Special Mothers Project is now official and has legal backing. We finally got the project registered with the Registrar-General’s Department in Ghana.

What we do is purely advocacy and education on Cerebral Palsy issues

We are NOT looking for donations, WE are looking for collaborations/partnership.

Where we are Now: we have already done a lot of advocacy via media (news reports) on Cerebral Palsy. We partner with other NGOs with similar objectives to promote and educate the populace on Cerebral Palsy Issues. We are also part of a Parent Support group with about 50 parents

For instance, last year we rode on the platform of Sharecare Ghana to celebrate World Cerebral Palsy Day. We currently also partners the CBM, a non governmental organization on a project piloting home based physiotherapy for children with Cerebral Palsy in the Northern part of Ghana.

Our Dream is for more collaborations and Partnerships to

1.      Serve as a counselling point for new mothers with Cerebral Palsy children

2.      Partner to organize training for mothers of CP children in basic physiotherapy and speech therapy. Reason is the mothers or caregivers spend the most time with the children and empowering them with such skills goes a long way to enhance and improves the children’s overall well being

3.      Partner with organizations and sister NGOs to celebrate World Cerebral Palsy Day. This year’s World Cerebral Palsy Day will be marked on 5th October, 2016. World Cerebral Palsy Day is celebrated on the first Wednesday in October each year.

4.      The Project is also coming up with a book (Publication) titled: The Unexpected. We are still talking with publishers to see if we can get help with this. Our intentions is not to sell this book but to give it to parents, midwives and other health care professionals for onward distribution. We believe this book will inspire many families with CP children to soldier on.

Hope – Our fervent wish and prayer is to put a smile back on a rather depressed mother because she had a CP child. To save the lives of children who otherwise will be killed or isolated from society. To see Ghana have policies that are favourable, especially in the areas or education and health for the children with Cerebral palsy

And yes we do have a role model in Ghana – Mama Lydia Bedwei, Mother of Farida Bedwei

Few Facts about Cerebral palsy

Cerebral Palsy is the most common childhood disability

Cerebral palsy doesn’t necessarily mean learning disabilities. People with CP often have an equal or better IQ than everyone else.”

Many kids with cerebral palsy can, will and should go to mainstream schools.”

There are four types of CP: spastic, dyskinetic, ataxic, and mixed.

CP affects about 17 million people and about 350 million people are connected to someone with CP.”

Every case of cerebral palsy is as unique as the person who has it.”

One child every hour is diagnosed with CP.”

“Kids with CP are still kids. Nothing more, nothing less.”

Cerebral Palsy is a neurological disorder that affects body movement and muscle coordination in children

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